[Yes it's a while between my 31 Day series posts ... like ages!! Getting there though ... and I'm planning to put them into a book soon too] Some time ago I wrote a post about being alone versus loneliness. It got me thinking about all the things I really enjoy doing alone. … [Read more...]
CFS or Pyroluria? My Pyroluria Diagnosis. And Why I Wonder Why It Took So Long To Test For It?
So, What's Pyroluria? I want people to know about pyroluria. I want everyone to know, but especially doctors because for some reason, in over 20 years of illness, baffled doctors and other health professionals have thrown up their hands and declared I must have Chronic Fatigue … [Read more...]
CFS & Motherhood: A Complicated Mix on May 12
For the first time since I became a mother in 2003, today is both Mother's Day AND International ME/CFS Awareness Day. Juggling CFS and motherhood is something I've got used to over the years, but it's far from an easy juggle. Most of the time I do pretty well, but today is not … [Read more...]
Twitter CFS / ME / FM List – May 12 ME/CFS Awareness Day
As part of ME/CFS Awareness Day May 12, 2013 I thought I'd acknowledge all those people worldwide living with CFS/ME/CFIDS/Fibro who are on Twitter. I eventually want to do a blogroll too, but I've not seen a Twitter or Facebook Page CFS/ME list (it may be that I haven't looked … [Read more...]
6 Ways to Deal With a CFS / ME Relapse
“No. No, no, no, no, no!! I can’t be going backwards again. I was going so well. Getting so strong. On the way to recovery. What’s happening?! Why am I wiped out again? It can’t be. It can’t be a relapse. Can it?!” Sound familiar? It certainly sounds familiar to me. … [Read more...]
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