(I started this blog 2 weeks ago, but you know how it goes ... my recent health challenges have meant I haven't finished it until now. Part of the reason was also that I wanted to do the blog justice & include lots of photos to really give you a feel for why THIS event was so … [Read more...]
Feeling Vulnerable & Showing It: Not Easy But Sometimes Necessary When Managing CFS / ME
Sometimes I find it so hard to cope with this illness and pain. I put on such a good face and fool everyone so well. I write a blog about living powerfully with CFS / ME for heaven's sake! But sometimes I really don’t feel powerful. Sometimes I really don’t feel like I’m … [Read more...]
A New Focus: The CFS Blog
(For some time I have been resisting focussing this blog specifically on people living with CFS/ME/CFIDS. But when I resist something it's usually a sign I should be doing it ;-), and this is no exception. So I have decided to now focus on writing blogs for people living with CFS … [Read more...]
Physical Image: How important is it? – World’s Greatest Shave 2013
In a few days time I’m going to find out just how much physical image means to me. Why? Because I’ll have no hair left. I am taking part in the World’s Greatest Shave – a fundraiser for the Leukaemia Foundation – and on Friday 15th March I will be shaving my head to raise money … [Read more...]
Alone, lonely, isolated? It Can Be When Living With CFS / ME & Other Spoonie Illnesses
Sometimes it really feels like we’re all alone in the world, doesn’t it? When managing a life with CFS / ME, illness and pain it can feel even more like we’re on our own. Facing the whole prospect of aloneness is something I’ve been dealing with a lot lately. I have a strong … [Read more...]