Is CFS your enemy or your ally? What a strange question, you may say, but whether we view our health issues as our ally or something to fight against makes a huge difference. For a long time I saw my illness as the enemy - something to fight, to resist, to plot against and … [Read more...]
But You Don’t Look Sick … Oh, Now You Do!! The Ironies of CFS / ME
Oh, the irony!! For over 20 years I have battled the invisible nature of CFS and wished that there was some visible sign of how sick I really was at times. But now, after shaving my head for the Leukaemia Foundation’s World’s Greatest Shave three weeks ago, suddenly people ARE … [Read more...]
Change The Context, Change The Experience of CFS & Pain
One of the major things I do to manage pain is restructure the context around how I view pain and its constraints. In 2006 I did some training and development courses at Landmark Education, a worldwide organisation that runs particularly good programs. At that point in my life I … [Read more...]
Alone, lonely, isolated? It Can Be When Living With CFS / ME & Other Spoonie Illnesses
Sometimes it really feels like we’re all alone in the world, doesn’t it? When managing a life with CFS / ME, illness and pain it can feel even more like we’re on our own. Facing the whole prospect of aloneness is something I’ve been dealing with a lot lately. I have a strong … [Read more...]
The Curse of Perfectionism in Managing CFS / ME & Other Chronic Illness
Perfectionism is the perfect excuse not to do anything in life. Perfectionism is often the equivalent of procrastination, or at the very least, being a perfectionist usually leads to a great deal of procrastination - "If I can't do it perfectly/properly I won't do it at all!" is … [Read more...]
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